Philosophy about 

Philosophy about self-help for deafened people

 
    This site is not an organ for advocacy or a clearing house for technical information. Why? Because there are enough people to tell you what you should know, what you should have, what you should do, and even what you should feel. That is the misfortune of being a ‘Special Needs’ population. Everyone knows best. Some of these people who write in other publications or practise in the professions do not even experience deafness as we do. Even though I am deaf—perhaps like you—I want to tell you that I don’t know what is best for you. Neither does anybody else. The only person who can ever know what is best for you is you. Factoids about technical things and laws and skills are really only a snapshot of what was best for somebody else.
Many times, these people offer information that is absolutely precious. I had my first ‘revelation’ from an audiologist who helped me to realize that I wasn’t hearing the same as hearing people did, and that other deaf people experienced what I did. He also told me to wear a hearing aid. The first part of what I learned from him was absolutely a turning point for me. The second part—which I swallowed without much reflection—was expensive and didn’t help me at all in the way he intended.
I didn’t want a cochlear implant, but I have always respected the individual right to make an informed decision to have one. I am happy to discuss CI’s if I am not constantly assaulted with sales pitches and criticism for my position. A couple of the implantees on a cochlear implant panel I attended seemed to feel personally responsible to proselytize for implantation and for some reason also to apologize for the unsuccessful cases. I had to ask : “How can we share information about CI’s without the pressure and sales pitch?” This sparked some interesting responses, and—I was glad to see—a bit of self-examination by the pro-implantation panelists. But immediately afterward, in the buffet line, another implantee accosted me and said, “You made a very good point and I understand what you are saying, but I think you would be an excellent candidate for an implant. You really should consider one.” You can make a person hear, it seems, but you can’t make them listen.
Some groups use the term self-help to mean peer-advising. Maybe that’s where my thick-skulled friend (above) learned his self-help techniques. My philosophy is that self-help does not mean that more-experienced but similarly ‘afflicted’ (as they invariably view themselves) people will tell you what you should do instead of doctors and other professionals telling you what to do. Self-help is about saying how you feel and cope with aspects of your deaf life and hearing how other people feel and cope. Just because you’re the only person who can know what is best for you doesn’t mean you are alone. When you listen to what people say, and think about how similar and different their life is to yours, you can pick and choose new things to try, or new ways to think about your own feelings.And we each help ourselves, in our own way, as and when we are ready.
Philosophy about self-help for deafened people
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Last revised: July 28, 2002