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This site
is not an organ for advocacy or a clearing house for
technical information. Why? Because there are enough
people to tell you what you should know, what you should
have, what you should do, and even what you
should feel. That is the misfortune of being a
Special Needs population. Everyone knows
best. Some of these people who write in other
publications or practise in the professions do not even
experience deafness as we do. Even though I am
deafperhaps like youI want to tell you that I
dont know what is best for you. Neither does
anybody else. The only person who can ever know what is
best for you is you. Factoids about technical things and
laws and skills are really only a snapshot of what was
best for somebody else.
Many times, these people offer
information that is absolutely precious. I had my first
revelation from an audiologist who helped me
to realize that I wasnt hearing the same as hearing
people did, and that other deaf people experienced what I
did. He also told me to wear a hearing aid. The first
part of what I learned from him was absolutely a turning
point for me. The second partwhich I swallowed
without much reflectionwas expensive and
didnt help me at all in the way he intended.
I didnt want a cochlear
implant, but I have always respected the individual right to make an
informed decision to have one. I am happy to discuss
CIs if I am not constantly assaulted with sales
pitches and criticism for my position. A couple of the
implantees on a cochlear implant panel I attended seemed
to feel personally responsible to proselytize for
implantation and for some reason also to apologize for
the unsuccessful cases. I had to ask : How can we
share information about CIs without the pressure
and sales pitch? This sparked some interesting
responses, andI was glad to seea bit of
self-examination by the pro-implantation panelists. But
immediately afterward, in the buffet line, another
implantee accosted me and said, You made a very
good point and I understand what you are saying, but I
think you would be an excellent candidate for an implant.
You really should consider one. You can make a
person hear, it seems, but you cant make them
listen.
Some groups use the term self-help
to mean peer-advising. Maybe thats where my
thick-skulled friend (above) learned his self-help
techniques. My philosophy is that self-help does not mean
that more-experienced but similarly afflicted
(as they invariably view themselves) people will tell you
what you should do instead of doctors and other
professionals telling you what to do. Self-help is about
saying how you feel and cope with aspects of your deaf
life and hearing how other people feel and cope. Just
because youre the only person who can know what is
best for you doesnt mean you are alone. When you
listen to what people say, and think about how similar
and different their life is to yours, you can pick and
choose new things to try, or new ways to think about your
own feelings. And we each help ourselves, in our
own way, as and when we are ready. |
Philosophy about self-help for deafened people Is this an ALDA page? Articles and Resources About Kathryn Woodcock Deafened People book |